ME/CFS – What Is It?
Recent, leading-edge research has discovered a link between ME/CFS and the XMRV virus.
ME/CFS identifies a disease affecting nearly 20 million people worldwide (17 million total, with 1 million in the US and about 800,000 in Canada).
The “ME” stands for MyalgicEncephalomelitis and the CFS stands for Chronic Fatigue Syndome.
XMRV identifies a virus that has now been linked to the disease. It’s one of a family of MLV-related viruses now linked to the disease in some way … further research required to determine exactly how.
CFS has been around since the 1930s and has mystified doctors for decades.
CFS can strike any adult, but it does tend to affect more women than men.
Some CFS sufferers are Baby Boomers who don’t really believe that their symptoms are a necessary part of growing older, but many are younger: middle-aged, or even Gen Y’ers.
When Baby Boomers retire, they want to enjoy a good quality of life, but ME/CFS robs them of much of the enjoyment of their “golden years”.
ME/CFS significantly impacts an individual’s quality of life. Some have gone so far as to say, “CFS won’t kill you, it’ll just make you wish it did.”
ME/CFS Complicating Factors
There is no specific test you can take to determine if you have CFS (at least not yet … but, hopefully that will change soon as a result of recent research advances).
And the name “Chronic Fatigue” itself has been very problematic – causing people (laymen and professionals alike) to discount the seriousness of the illness and directly – or indirectly – tell people that they are just making it up, or being hypochondriacs. Fortunately, as a byproduct of some of the latest research, people are slowly moving toward a new name, “XAND”.
Patients are frequently given an incorrect diagnosis of depression, and consequently, the real ME/CFS/XAND disease may not get recognized until after seeing many different doctors and being treated for a variety of ailments.
Social Ramifications of ME/CFS
The social ramifications are also severe. Typically, there are few outward signs of the disease … People simply “don’t look sick” …
Try explaining to your boss, your family, or your friends how bad you feel, when you don’t show any of the normal signs of being sick or injured (i.e., no heart attack, no fever, no casts on your arm or leg, no surgical scars to show off, no spots, bruises, etc.). Or, try explaining why everyone else who got the flu only missed a day or two of work, and you missed a week.
Worse yet, try justifying your disability claim to the insurance adjuster, or Social Security officer.
In fact, it seems like the more you try to explain, the worse it gets. Because this ME/CFS is so far outside their ability to understand, people tend to think that you’re lying.
Chronic Fatigue Got Your Doctors Mystified?
Are you among the millions of Americans, and millions more worldwide, who suffer from chronic fatigue that is not relieved by sleep? And, unlike people really suffering from depression, exercise doesn’t relieve symptoms – it only makes them worse.
Have you seen numerous doctors and spent hundreds (if not thousands and thousands) of dollars on a variety of treatments which haven’t helped?
Have you had to take disability leave and quit working?
Has your social life become almost non-existent?
If so, you’ll probably be glad to hear that there have been some promising advances made in the field recently.
Whittemore-Peterson Clinic for CFS & Other Neuro-Immune Diseases
A major, new research and treatment facility called the Whittemore-Peterson Institute in Reno, Nevada has just recently opened its doors. It will specialize in the research and treatment of ME/CFS/XAND patients … and those suffering from other neuro-immune diseases.
This $70 million state-of-the art facility should bring new attention and new hope to millions of ME/CFS/XAND sufferers in the US and worldwide.
Learn more about ME/CFS Mindy Kitei’s post.

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